End of Life discussions
Structure Overview:
- Introduction
- Information Gathering
- Delivering Information (Warning Shot)
- Explore end of life views
- Explain EOL Care
- See the Patient Together
Introduction
- “Thanks for meeting with me. Would you like anyone else to be here with you?”
Information Gathering
- Clarify current understanding of the situation.
“Before we start, can you tell me what you already know about what’s been happening?” - Ask about baseline health and function: “How was your [loved one] managing day to day before this illness?”
- Explore end-of-life wishes:
- “Has your [relative] ever spoken about what they would want if they became very unwell?”
- “Do they have an Advance Care Directive or Power of Attorney?”
Delivering Information (“Warning Shot”)
- Gently prepare: “I’m afraid I have some difficult news.”
- “Your [relative] is very sick, and I’m worried they may be nearing the end of their life.”
Explore views on end of life
- “At this stage, it’s looking less likely that further treatment will help.”
- “What do you think your [relative] would have wanted if their younger self could sit here with us and tell us?”
- “Knowing their quality of life as it is now, would they want to come back to hospital for more treatment, or would they prefer to die peacefully at home?”
- “I’m worried we’re not prolonging their life, but actually prolonging their dying.”
Guide Through EOL Care
- Discuss next steps:
- Comfort-focused care / palliative approach
- Referral to palliative care team
- COSA chart (comfort observations) for monitoring
- Address symptom control:
- Pain – regular analgesia
- Agitation – benzodiazepines, reassurance
- Breathlessness – opioids, positioning, fan
- Secretions – anticholinergics
- Carer stress – ongoing support and respite
See the Patient Together
- “Let’s go and see your [relative] together.”